Kidnie is an initiative of the Dutch Kidney Foundation (Nierstichting) to raise funds for research into kidney diseases in children. Together with pediatric nephrologists and researchers, we strive for child-friendly treatments and, in the future, even a cure for children with kidney disease.

Kidnie attaches great importance to the protection of your personal data. We do everything we can to safeguard your privacy and therefore handle personal data with care. We comply in all cases with applicable laws and regulations, including the General Data Protection Regulation (GDPR).

The core of our privacy policy

• We only process your personal data for the purpose for which you provided it to us. These purposes, and which personal data we record for them, are described in this privacy statement.

• We only process the personal data that is minimally necessary for those purposes.

• We ask for your consent when we need it to process your personal data.

• We have taken appropriate technical and/or organizational measures to ensure the security of your personal data.

• We do not share personal data with other parties unless this is necessary for carrying out the purposes for which you provided them to us.

• We are aware of your rights regarding your personal data and respect them.

• We only use (process and provide) your data for PR and publicity purposes after you have given explicit and prior consent.

In this privacy statement, you will find information about personal data we record from/for:

• Donors

• Volunteers

• Interested parties

• Event participants

• Sponsors

As Kidnie, we are responsible for the processing of your personal data. If you have questions after reading this privacy statement, or in general about the protection of your personal data by us, please contact us at:

Kidnie hallo@kidnie.nl

Why do we process your personal data?

Purpose: Establishing and executing donorship or gifts: We register your data when you contact us or contribute financially as a donor, volunteer, organization, interested party, or participant in campaigns or events. Relevant data, such as name, address, phone number, email address, date of birth, bank account number, transaction data, and participation data, are recorded. This processing is based on an agreement between the gift giver and us.

Purpose: Participation in events: When participating in future events, you must create an account on www.kidnie.nl. We process your email address, name and address details, salutation, phone number, and date of birth to process your registration, enable participation, and inform you prior to the event. The emergency number is used exclusively in case of emergencies. The legal basis is the execution of the participation agreement.

Purpose: Recruiting event sponsors: Kidnie processes data such as name, email address, and payment details to execute donations and send donation receipts. Through a participant's personal page, you can also donate anonymously. The legal basis is the execution of the agreement. When sponsoring a specific participant, your name and donation are shared with the participant. You can choose to sponsor anonymously or compose a personal message that will be placed on the participant's personal page. Consent is requested if you want your name and donation to be displayed on the personal page.

Purpose: Informing and newsletter: Kidnie keeps sponsors informed about future events via email, unless you have indicated you do not wish to receive these. The legal basis is Kidnie's legitimate marketing interest. If you want to receive more information from the Dutch Kidney Foundation, you can subscribe to their newsletter. The legal basis for this is consent.

Purpose: Securing and improving the website: Kidnie uses cookies and similar technologies to secure and improve the website. The legal basis for this is your consent, with the exception of functional cookies and cookies with minimal impact on your privacy. Please refer to the Cookie Statement for more information. You can withdraw your consent at any time.

Purpose: Social media: You can choose to share certain information on social media. The legal basis for this is the execution of the agreement.

Your rights regarding the personal data we record from you

You have the right to request us to exercise your rights regarding your personal data. You can submit the following requests via hallo@kidnie.nl:

• Access: You can request access to the processing of your personal data.

• Correction: You can request correction or supplementation of your personal data if they are incorrect or incomplete.

• Deletion: You can request deletion of your personal data when they are no longer needed, upon withdrawal of consent, upon objection to processing based on legitimate interest, or in case of unlawful processing.

• Restriction of processing: You can request restriction of processing in certain cases.

• Objection: You can object to processing based on legitimate interest. Opt-out options are included in emails and marketing communications.

• Data portability: You can request the transfer of your personal data to another organization.

• Withdrawal of consent: You can request the withdrawal of previously given consent.

• Filing a complaint with the supervisory authority: You can file a complaint with the Dutch Data Protection Authority (Autoriteit Persoonsgegevens) if you believe Kidnie is infringing on the protection of your personal data.

Security

We have taken appropriate technical and organizational measures to protect your personal data against loss or unlawful processing. Data connections are secured, and Kidnie uses access control. In all cases, we may require you to identify yourself before we comply with such a request.

Disclosure to third parties

Kidnie may engage third parties to process your data, whereby these parties act as processors for Kidnie. We ensure that these parties provide sufficient safeguards for the security and careful processing of personal data. For donations, payment data is processed by the payment service provider.

We use third parties for:

• Managing the internet environment of our database

• Managing our hardware and software

• Sending newsletters and invitations

• Production of publications (data is only processed and provided after consent)

• Fulfilling publicity (data is only provided after consent)

We only transfer personal data to third parties with whom we have concluded a data processing agreement. In these processing agreements, we establish arrangements regarding processing to safeguard the security of your personal data.

No storage outside the European Union

We do not provide personal data to, or store data with, parties established outside the EU.

Retention periods

Personal data is stored as long as the purpose is justified. After 7 years of inactivity, personal data is destroyed.

Website cookies

On Kidnie.nl, we want to help you quickly and easily. That is why we use cookies and similar technologies, so you don't have to fill in the same data every time. We also use cookies to track your internet behavior on the site, collect personal data about you, and build a profile of you. This allows us and third parties to show you personalized advertisements and enables you to share information via social media.